Presentation (Times are in PDT)

Maintaining Adolescent Confidentiality in the Age of Online Patient Portals

1:15 PM–1:35 PM May 21, 2020 (Conference Time: US - Pacific)

1:15 PM–1:35 PM May 21, 2020


Abstract: Maintaining adolescent confidentiality is difficult, especially as online patient portals expand access to sensitive health information. We aim to: 1) Review adolescent healthcare confidentiality laws and professional society guidelines/standards for electronic healthcare data and confidentiality; 2) Describe our institution’s implementation of differential access controls for adolescent confidential healthcare information, especially problems with erroneous account emails; 3) Recommend methods to rectify and prevent erroneous sign-ups via clinic workflows and detection of erroneous email accounts.

Describe the new knowledge and additional skills the participant will gain after attending your presentation.: Attendees will learn about how adolescent health privacy laws, which vary by state, coincide with federal laws on children’s electronic privacy and with national society guidelines on the protection of adolescent health information. With this context, we will describe our institution’s experience and lessons learned in the human and technological factors that need to be addressed in order to grant adolescents increased access to confidential health information via a patient portal while maintaining their confidentiality.


James Xie (Presenter)
Stanford Children's Health

Paul Fong, Stanford Children's Health
Adam Hogan, Stanford Children's Health
Tom McPherson, Stanford Children's Health
Jennifer Carlson, Stanford Children's Health
Natalie Pageler, Stanford Children's Health
Tzielan Lee, Stanford Children's Health