Enabling Patient-Centered and Interoperable Patient-facing Clinical Decision Support: Recommendations from the PCCDS Learning Network

10:00 AM–10:15 AM May 20, 2020 (Conference Time: US - Pacific)

10:00 AM–10:15 AM May 20, 2020

Regency B


Abstract: With the advent of interoperability standards such as Health Level 7 International (HL7) Fast Healthcare Interoperability Resources (FHIR), CDS Hooks, and Clinical Quality Language (CQL), patient-facing clinical decision support (PCCDS) seems imminent. However, integrating effective PCCDS into clinical care remains stagnant. In 2019, the Agency for Healthcare Research and Quality (AHRQ)-sponsored PCCDS Learning Network chartered the Patient-facing CDS Application Development Work Group (PFWG) to develop recommendations to address these two barriers, with chronic pain management chosen as an exemplar use case. Through an open, multi-stakeholder process that engaged 102 representatives from healthcare, industry, and academia, and a panel of 10 patient advocacy experts, this Work Group developed recommendations for patient-centered design across 4 axes: plan, communicate, adjust, and support. The group also developed recommendations around interoperability, developed a prototype PCCDS application integrated with the EpicĀ® electronic health record (EHR), and identified features essential for any minimum viable product to contain. If applied broadly, the recommended features should help teams develop and deliver patient-facing CDS applications that are both useful and interoperable.

Describe the new knowledge and additional skills the participant will gain after attending your presentation.: Attendees to this session will be apprised of 1) methods for engaging patient advocates in a user-centered design approach to application development; 2) the features a patient-facing CDS application should include to meet the needs of patient users; and 3) the core technical considerations to address in order to use a standards-based approach in the development of a patient-facing CDS application which can interface with the patient portal of an electronic health record system.


Laura Marcial (Presenter)
RTI International

Beth Lasater, RTI International
Joshua Richardson, RTI International
Barry Blumenfeld, RTI International
danny van leeuwen, Health Hats
Kensaku Kawamoto, University of Utah