Abstract: Regulation, technology, and culture shifts have enabled patient access to their own information through the EHR patient portals and soon increasingly through third party apps. In the world of pediatric patients, parents and guardians access their children’s data but as they grow older adolescents have the right to confidential care in many areas that are considered more sensitive such as reproductive and mental health. To protect that privacy digitally requires segmenting data such as a lab test for sexually transmitted infections or a birth control prescription. Due to various state laws there has never been a standard agreed upon list of what data is considered sensitive and furthermore, highlighting these points in unstructured free text is even more challenging. This will be a panel discussion that presents technical and governance ideas to practically think about data segmentation for privacy for both structured and unstructured data in order to protect adolescent’s confidentiality while still advancing goals of patient access to their health data.

Describe the new knowledge and additional skills the participant will gain after attending your presentation.: The attendee should be able to describe the complexity of patient privacy laws regarding adolescent confidentiality
The attendee should be able to utilize resources to understand local laws and sensitive information definitions
The attendee should be able to identify sensitive information within the electronic health record in discrete and free text data fields
The attendee should be able to define required components of a governance structure for protection of adolescent privacy at her home institution

Authors:

Jennifer Lee (Presenter)
Nationwide Children's

Jeffrey Hoffman (Presenter)
Nationwide Children's

Chethan Sarabu (Presenter)
Stanford

Natalie Pageler (Presenter)
Stanford