Abstract: The growing prevalence of chronic conditions requires longitudinal engagement in treatment decisions by individuals and their care teams underscores the need for effective shared decision making (SDM). Person-generated health data (PGHD), integrated with data from clinical encounters are necessary to provide a comprehensive understanding of health and illness, including both self-management support and SDM. While an ever-expanding number of consumer-facing tools are deployed across care settings there is a concomitant need for a unifying framework to guide the identification of evidence gaps, set priorities for future studies, and learn about consumer technology preferences to optimize the practice of SDM and the development of useful and usable tools. A collaborative consensus project engaging a variety of stakeholder perspectives resulted in the findings offered by this panel. All stakeholder insights were valued equally during the deliberations and during co-authoring of papers and other products of the work. This session will offer perspectives on the technical, regulatory, and cultural challenges of shared decision making (SDM) and suggestions for how emerging technologies and data generated by individuals can be combined with clinical data to improve SDM processes. Panelists will present existing evidence and future priorities for clinical informatics research, implementation, and development.

Describe the new knowledge and additional skills the participant will gain after attending your presentation.: Participants will learn:
1. To define the concepts of shared decision making and person-generated health data
2. To describe the varied perspectives of stakeholders including patients, clinicians, health system leaders, tool developers, and policy makers regarding challenges and needs for technology-enabled shared decision making
3. To be able to discuss and debate the emerging evidence related to technology-enabled shared decision making
4. To identify possible approaches for increasing the uptake of shared decision-making in clinical practice, with awareness of the attendant technical, regulatory, operational, and cultural challenges.

Authors:

Katherine Kim (Presenter)
University of California Davis

Patricia Franklin (Presenter)
Northwestern University

Sarah Greene (Presenter)
Health Care Systems Research Network

Margo Edmunds (Presenter)
AcademyHealth